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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 8 hours ago | Replies (6026)

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@clairemcl

I’m having problems walking. I don’t have a diagnosis of neuropathy. I have severe lumbar scoliosis and stenosis. A doctor recommended surgery last year, but I also have osteoporosis and getting the right treatment for that has delayed any decision about surgery. I could walk fine with a cane up to a mile last fall(with short rest stops).

In December 2023 my legs “felt funny” and I started having difficulty walking, with some increased back pain. Beginning in January 2024, I had severe pain (sciatica?) radiating down my buttocks and both legs, along with tingling and numbness in my legs. I had to use a walker and started gabapentin and also a course of steroids. I never used a walker until this happened.

Now the pain has receded, still there off and on but more manageable. My legs have not gotten better. Using a cane for short distances works, but I wobble side to side and that hurts my hips. I still need to use the walker to really get anywhere. My legs feel weak, as though they will give out, often numb and/or tingly.

I had an MRI and spine doctor just says take Forteo and then surgery. So I guess all the problems stem from the stenosis getting worse, but I don’t know for sure. Any suggestions?

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Replies to "I’m having problems walking. I don’t have a diagnosis of neuropathy. I have severe lumbar scoliosis..."

Hi Claire,
Wondering if your MRI mentioned tarlov cysts.
Most neurologists say they can't be symptomatic but they can definitely cause major problems. Look up Dr. Feigenbaum if tarlov cysts were noted on MRI