← Return to How often does PMR progress to GCA?

Discussion

How often does PMR progress to GCA?

Polymyalgia Rheumatica (PMR) | Last Active: Nov 2 9:39am | Replies (128)
Comment receiving replies
@lmoross

Please be very cautious about infection on the Actemra. I was on it for a year. A wonder drug that put my PMR into complete remission after 4 years. However it suppressed my immune system so significantly I contracted Influenza A, even though vaccinated, which went on into pneumonia, sepsis, Afib, pleural effusion and time in the ICU. Almost died.
Please be careful.
Best wishes for better health.

Jump to this post

Replies to "Please be very cautious about infection on the Actemra. I was on it for a year...."
isabelle7 | @isabelle7 | Jul 11 10:36am

@lmoross

Thank you for the warning. We are doing all we can to avoid infections. We still wear masks when we go into stores or are in crowded indoor settings. My husband is the one with PMR, GCA and now osteoporosis (which he developed taking prednisone) and when I travel I wear a mask on the plane and around anyone who might be sick. I'm extremely cautious not to bring something home to him. It's stressful and something we think about every day. It sounds like they're planning to keep him on Actemra for some time.

I am so sorry to hear what happened to you when you got the flu. That is horrifying!! I'm so glad you survived it and are here to warn others. Best wishes to you too!

VIEW AND REPLY