← Return to POTS, Pre- or Post-COVID: Where did you find treatment and what helps?

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@welchllb

Hi All POTS People, I think I have previously given input to this discussion but can't find my comments. I am from MI. I had a bad case of COVID and pneumonia in August 2020 and basically, remained unable to live like my pre-COVID self until September '23 when I was FINALLY diagnosed with POTS by a Neurologist. I, now, take 30 mg of Mestonin twice a day. I still have break throughs of SOB, fatigue and dizziness but 80% of the time, I'm pretty active. I was diagnosed with CFS and fibromyalgia by Mayo about 20 years ago. I still take low dose Tofranil for my fibro. CFS is probably still laying in wait to re-emerge sometime in the future. However, needing more sleep than others is my only CFS symptom now. I try to forget about it. GI problems and headaches have not gone away with the POTS diagnosis. I'm trying Bentyl right now for my GI stuff. Please ask me anymore questions you have. Dr Tam's Clinic sounds amazing. I'm going to research it. Thank you, Lu

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Replies to "Hi All POTS People, I think I have previously given input to this discussion but can't..."

@welchllb. you can find all your comments by going to your profile (upper right corner) and then clicking Comments.