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Coughing a lot after lung cancer treatment. Don't know why
Lung Cancer | Last Active: Apr 10 9:03am | Replies (77)Comment receiving replies
Hello I'm glad I found this spot as well. As I stated I'm in Minnesota and go to the Rochester clinic. I have had wonderful service by world class providers, but I don't understand the followup, there is non. They diagnose you they treat you but that's it no followup no nothing. I have been struggling with everything and have found no support. Why
Replies to "Hello I'm glad I found this spot as well. As I stated I'm in Minnesota and..."
@stimey60, you've received helpful tips from @cmcguire10 and @lls8000.
I completely understand your concern about followup. You're right that after the whirlwind of diagnostic testing and the full-on care throughout active treatment - surgery, chemo and/or radiation, the end of treatment can feel like the bottom just fell out. It seems like you're left in a void.
Follow-up and the transition of care looks different for every patient. Follow-up care for cancer means seeing a health care provider for regular medical check-ups once you're done with treatment. These check-ups may include bloodwork, as well as other tests and procedures that look for changes in your health or any problems that may occur due to your cancer treatment.
Your team should take care to discuss the follow-up plan with you. I might start by asking specific questions to your team at Mayo Clinic like:
- What is my follow-up care plan?
- How often will I have follow-up appointments?
- Who is responsible for my follow-up care? Will I been seen for follow-up by Mayo Clinic or by my PCP locally?
- When is my care transitioned to my PCP?
- If I'm concerned about something cancer related, who do I contact?
You should also know about the Cancer Education Center at Mayo Clinic, Rochester in the Gonda building. They provide many amazing services from patient classes, library resources, and survivorship care. Many of their offerings are available online as well as in person.
- Cancer Education Center https://connect.mayoclinic.org/blog/cancer-education-center/
Have you ever visited the Cancer Education Center? Did you know about it?
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@stimey60, I'm not treated in Rochester, but I've found that sometimes my oncologist and pulmonologist don't always coordinate all that well. I've started seeing my primary care provider after a few years of not seeing her, and I have been glad that I did. She was able to answer some questions for me, pull together some information from the specialists, and she got me a follow up appointment with one of the specialties when she wasn't able to help.
Just a suggestion, but have you reached out to your primary care provider?