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How Much Time Between Your Diagnosis to Your Start of Treatment?
Prostate Cancer | Last Active: Mar 22 4:47pm | Replies (20)Comment receiving replies
Bens1,
Can you tell me about care after the 5. How often do and how soon did you have PSA testing. Did you repeat a PSMA/PET. What should you watch for, worry about. Thanks
Replies to "Bens1, Can you tell me about care after the 5. How often do and how soon..."
gently: 3 months after my treatment, I had psa testing and every 3 months thereafter until my last visit in January where my oncologist said every 6 months. I am still going to have a blood test every 3 months instead for a little while. I did not have a psma pet scan originally. I had a prostate MRI and then a biopsy. Like most of us, I watched for urinary and rectum issues but only had mild urinary issues which Flomax helped with. The anxiety was every blood test hoping I did not see a real jump in PSA.
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I had 5 photon SBRT treatments and 6 months Orgovyx. I was unfavorable intermediate with one 4+3, one 3+3 and clear PSMA. Last SBRT was Dec 28th, Orgovyx ends June 5. I have my three month blood draw nest Thursday and my doc "expects the PSA to be down". With the Orgovyx it will likely be down significantly from the 7.8 before treatment. He is saying PSA every 6 months after that. Those are the latest NCCN guidelines.
Stay Strong Brother