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How often does PMR progress to GCA?

Polymyalgia Rheumatica (PMR) | Last Active: Nov 2 9:39am | Replies (128)

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@isabelle7

That was not our experience. My husband developed PMR in May 2023 and was put on prednisone. While still on prednisone, a lowered dose (12.5 mg from 30 mg when first diagnosed) he developed jaw pain, headaches and neck pain, scalp tenderness, face swelling etc. In Feb 2023. His rheumatologist didn’t believe he had GCA. I had to push the issue to get a temporal artery biopsy which turned out to be positive. He has the worse case his doc has seen and is now on 80 mg prednisone per day and Actemra. He also landed in the ER where he got 3 IV infusions of very high doses of steroids.

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Replies to "That was not our experience. My husband developed PMR in May 2023 and was put on..."

To isabelle7,
Wow, thankfully he had you as an advocate and I'd fire your rheumatologist ASAP. Thank you for letting us all know. I will be having a strong talk with mine.