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@bayviewgal

Well, here it is a week later and his sleeping is now kinda wonky. Some days he's up by 10am and others its 1pm. I also like the opportunity of alone time while he's sleeping but i have to remind myself to go in and wake him up at some point...to take his meds, eat and to just enjoy the day. Im fortunate in that he doesn't panic when I'm not with him every moment of the day, but he needs to know generally where I am when we're at home. But I know at some point it may get to him panicking.
As caregivers we are doing the best we can and I feel your fatigue as well. We are all experiencing different levels and phases of this journey and i'm glad that we can get advice and support for each other. I have a hard time getting to in-person support group, and am so thankful for this site. Thank you for sharing.

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Replies to "Well, here it is a week later and his sleeping is now kinda wonky. Some days..."

Yes, I used to be able to get to a dementia caregiver's meeting once a month for a couple of hours which was very helpful, hearing how others have dealt with such similar situations. Also surprising how unique each case is also. We moved from Wisconsin to Illinois for closeness to our children and grandchildren 10 years ago but some of them moved back to Wisconsin and the visits have become more and more rare, I assume because they are so uncomfortable seeing their mom/grandma deteriorate mentally. Anyway it's somehow comforting, although sad, that others are fighting this battle too.