← Return to Husband diagnosed with tonsil cancer: looking for tips and support

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@sepdvm

Hello @johnbonani. It is very hard to get hit with this kind of information and try to research and make sense of it and of all things then form a treatment plan. My cancer was ear, not tonsil, but I am still alive 12 years later after surgery, chemo, radiation, and 4 metastases. I have had close contact with a handful of tonsil survivors via an immune therapy clinic I attend. Whether or not your cancer is HPV related or not makes a difference in response to treatment. Surgery was the chosen option for the folks I know, and two of them followed with radiation. Radiation can be tough and leave you with more side effects, though as William said, Proton beam is a much better option where available. The man who chose not to do radiation had a recurrence years later. That said, every person is different, and every treatment protocol can be different and only your own doctor knows what is best for you. Gather information. Ask for a second opinion. Pursue travel to a large referral cancer center or teaching hospital. Consider a video visit for a second opinion. My choices for myself have been surgery first, than whatever is needed after that. Do you have a cancer center close enough to consider travel?

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Replies to "Hello @johnbonani. It is very hard to get hit with this kind of information and try..."

Thank you Sue. It is HPV related and yes we do have a good cancer center close by. We are very close to making the decision and leaning towards radiation/chemo. In part because while my surgical oncologist has described the TORS as do-able in my case it's also described as complex and will definitely require radiation afterward and he's unable to say if we could get away with a lower dose of radiation or not. My radiology oncologist does offer proton beam, not that that makes me feel a whole lot better but at this point leaning towards the radiology route.