I understand how upsetting this can be. I suffered excessive shedding due to substantial weight loss and/or post covid syndrome. Mine was due to telogen effluvium. My dermatologist said it would return over time. She did prescribe me medication, which I haven’t taken, since it seems to be resolving on its own.

Did your doctor mention the medication you were taking causing hair loss? I’d likely discuss it with them and consult with a dermatologist to get an official diagnosis and prognosis. And see if there is any treatment options. I hope you find some answers and help to get things resolved. Good luck!

I just switched 2 weeks ago from arimidex to exemestrane because of a positive result to a ctDNA test. The insomnia is worse and my hair seems thinner already. It did thin a bit with the arimidex but it just is flat and lifeless.

@sanantoniomimi I understand your distress at the hair loss. I took years of hormone therapy and my hair got got quite thin. The breakage is also a thing for me. I never had nerve enough to go to the dermatologist because I am quite sure I would get the same answer as I got with the rashes during chemo. The only one in our area is an old guy who just says “but you are alive, right?”. If you live in a larger area I would definitely consider it. There might be more you can do. Sadly mine has not gotten thicker, I am able to grow it a little longer again but it is quite thin.
Have you tried anything to try and protect it from breakage?

Thank you for responding. I did go to the dermatologist and he suggested Rogaine.
Both he and my oncologist also told me stress can also contribute to the hair loss. As much as I try to ignore the condition our country is in, I am convinced that is part of the problem. I was a history teacher for nearly 30 years, so it is in my DNA.
Thanks again.
Honestly I have so many other medical issues I am dealing with that I choose not to return to the dermatologist.
I am taking the wait and see attitude.

I was on several different aromatase inhibitors for 4 years and then switched to Tamoxifen hoping my joints would improve. My hair fell out in massive amounts. I ended up getting a "topper" that blended in with my remaining hair. I stopped the Tamoxifen and went back to Letrozole. My hair stopped falling out and slowly grew back in! Still on Letrozole for another 3.5 years. My joints hurt but I have hair!!!
I know that everyone experiences different side effects from AI's 🙁 Minoxidil works to keep your remaining hair from falling out. You must keep using it until you leave this earth.
Dermatologists can help you understand what is available currently. If you can get a few recommendations before you make an appointment, they might really help you navigate this cruel side effect.

Thank you for your response. I got the Rogaine suggested, but never used it. I was told it would not prevent the hair from falling out if I was still on the Exemestane. I prefer to lose it rather than have the thin brittle hair.

You are my people! I can only do what I can do and since my plate is pretty full right now, I so appreciate your encouragement.
Have a good one!