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DiscussionPancreatic Cancer Group: Introduce yourself and connect with others
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Replies to "Hope your weekend was good. No party for St Pat for us this year. When you..."
Cealia,
Weekend was good.
Has a suspicious CT looking for lung issues 4.4.22. Had PET scan 5.23.22 from pulmonologist. 5/25/22 both the pulmonologist and my PCP wanted to see me about the PET results. Had EUS @ Mayo, Jacksonville to confirm dx 6/10/22 then more tests from Mayo & surgical zoom call stating no surgery for 6-9 months then the prognosis on 29 June by Zoom call. Saw local oncologist 7/1/22; got port 7/7/22 and first chemo of the 44 chemo tx started 22 July 2022. At first for over a year I had chemo 2 weeks on and 1 off because the local oncologist said many pts could not tolerate 3 on / 1 off. The dose got lowered by 20% once & later changed to every other week. Never missed a chemo due to CBC results. Neuropathy for me is the worst, but acupuncture is helping restore my feet 🙂
I was given decadron and aloxi prior to chemos & I had generic Zofran & Compazine for after.
The first two sessions I used the Zofran/Compazine alternating every 4 hours then only prn if I was nauseous. (Not often @ all 🙂
The last 12 months was so much better since they have a cancer clinic in my hometown, and it is only less than a mile away! Before we went to Savannah which is about 45 miles away! That really did drain me.
I use protein powder from Walmart. (The chocolate is good) every day and eat lots of blueberries, vegetables and fiber/grains & I like meat & fish. The only things that really did not taste good to me were ranch dressing, Walmart chips in a can, and some pizzas/cheeses. I did not lose any weight! I gained 25 pounds & now have lost 7 of them (over about 5-6 months). Did lose my hair after the second treatment, but now I have fuzz on my head, eyebrows & eye lashes coming back & of course! Hair on my legs! (Who needed that!) 🙂
Am getting really anxious about this first CT post stopping the chemo after 28 Dec 2023!