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Evenity cardiac and stroke side effects update
Osteoporosis & Bone Health | Last Active: Aug 26 9:42am | Replies (40)Comment receiving replies
@timely was a bisphosphonate discussed? I took letrozole for 5 years and at the time my endo was concerned about my afib and so he and the oncologist did not protect my bones. I lost a lot of density. Now they tell me there is no longer a concern about Reclast and afib, and I wish I had been on it. I am sensitive to everything and Tymlos rescued me but I could have avoided so much bone loss.
Replies to "@timely was a bisphosphonate discussed? I took letrozole for 5 years and at the time my..."
This is my first time posting under this discussion, but I have been reading the posts daily. I now have to get serious about making a decision regarding Reclast. I am now going through all of this information collecting the pros and cons and then discussing my concerns with both the endocrinologist and my PCP who will be very forthcoming with me.
I read a few comments saying that “windyshores” is no longer
posting on this site. I have had AFIB since 2013. After a third ablation, I have been AFIB free for 2 1/2 years. Both of my doctors know that the fear on Reclast as it relates to AFIB is my top concern! But breaking a hip and becoming incapacitated is a major issue, too! Wow, risks versus benefits…….
Anyway, @timely, you posted that there is no longer a concern about Reclast and AFIB. I remember windyshores saying the original study discussing the interaction was debunked!! Does anyone know if she referenced that study and where I could find it? I have been looking.
Just a side thought, my husband has been on Reclast for years because of bone loss from a medication he is on. He had the pain and flu like symptoms after the first infusion, Thanks to this group, I got smart and asked that he had longer infusions. No side effects followed those. His last infusion was 20 minutes. He did not speak up and ask for a longer infusion. He had aches and pains for 5 days after that!! Lesson learned….
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No. This was last June and the NP insisted that Prolia was the only answer for someone with arrythmia and that any other choices would also cause blood clots and strokes. ($5,000 per shot without insurance) and you can never stop taking it. She would put me on Prolia forever.
I had read on the Inspire site of a woman who was 52 and did not get her Prolia infusion on time and then went on to have multiple rib fractures and a total nightmare situation.
I walked out of there and told her no. I felt like I was dealing with someone promoting Prolia and pharmaceuticals....
I realize that I have to address this soon. Have dealt with 2 other health issues in this time span.