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CA 19-9, sensitivity and responsiveness to treatment

Pancreatic Cancer | Last Active: Mar 23 3:13pm | Replies (15)
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@kathy2000

Hi there,

Following your conversation on CA-19-9 increases. My husband was diagnosed in November 2022 tumor on tail and Mets to liver. Inoperable. On cycle 24 CAPRI (capecitabine) due to FU shortage. Started at 840, was bouncing around (up and down) from August in the 60’s to as low as 33 in Jan. Starting to creep up. Feb 43, 58, Mar 87. Next CT scheduled for mid-April. Hope the pictures show a stable situation like the Feb. CT when we were in the 40-50 area.

Keep the faith. The CT is a better indicator. Best wishes.

@kathy2000

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Replies to "Hi there, Following your conversation on CA-19-9 increases. My husband was diagnosed in November 2022 tumor..."
ncteacher | @ncteacher | Mar 19 11:22am

Thanks for your post! The NP said the same thing as you: They look more at the CT scans and rely less on the CA 19-9 as a good indicator of stability, progression, etc. Anyway, at my request, the MD moved my regular lab draw to this afternoon, so we'll have the CA figure on Thursday. I already have a repeat CT scan scheduled for Thursday. So by end of the day or first thing Friday, we'll have those two pieces of info in plenty of time for my oncology appt. that afternoon. With luck, both will look good, and I can stop stressing for a while.

Cycle 24? I'm scheduled for 22 next week. Whew. This disease requires marathon effort. I'm sorry to hear your husband's team is having trouble getting 5FU. I have not been told about any shortage where I'm at.

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