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Newly diagnosed with CKD (Chronic Kidney Disease) and terrified

Kidney & Bladder | Last Active: Apr 9 10:49am | Replies (77)
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@help60

I'd say don't panic. You can't think when you panic. If you don't have a kidney Doctor, get one. And if you don't have a dietician that specializes in CKD, get one. Knowledge is power. There is a CKD Webinar going on this week sponsored by American Kidney Fund. Log on to their website, sign up for webinar. In the chat, you can ask questions and watch what talks that were given yesterday. Really hope this helps you out. I'm dealing with trying to stay calm as I navigate learning I'm stage 2 CKD. In process of finding Kidney Dr and dietician myself.

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Replies to "I'd say don't panic. You can't think when you panic. If you don't have a kidney..."
Ginger, Volunteer Mentor | @gingerw | Mar 22 3:25pm

@help60 Welcome to Mayo Clinic Connect. You have wise words of advice here, and absolutely, knowledge is power! "Don't panic" is easy to say, harder to accomplish, as i bet you know first-hand, right!?

Don't let a doctor pooh-pooh your concern over kidney disease. It is better, from my experience, to learn all you can to mitigate the condition. Proper diet for you, moderate exercise, stress control, adequate rest all play a part. When you understand the underlying cause of the kidney disease, work on that. For me, my underlying cause is a very rare autoimmune condition [less than 50 people ever diagnosed with it!] that causes fibrin deposits into the filtering components of my kidneys. No treatment for that. But by following a renal diet long before the drs suggested it, I was able to preserve function for a long time.

Tell us what you are doing to track down a good nephrologist and dietician, if you would?
Ginger

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