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DiscussionDoes Mayo Clinic do insulinoma testing?
Neuroendocrine Tumors (NETs) | Last Active: Mar 20 12:24pm | Replies (7)Comment receiving replies
Replies to "Do you mind me asking if you felt the hospital/doctor in North Carolina was an excellent..."
I did have a good experience in NC. Duke is where my initial diagnosis and was made as well as my first surgery in 2015. I had a great endocrinologist who was diligent in getting to my diagnosis. I ended up at Mayo when I had recurrence of hypoglycemia 3 months after my Whipple. They were unable to locate any additional tumors with MRI or Endoscopic US at Duke and so my endocrinologist there referred me to Mayo for additional testing in 2017. I had a week of testing and as a result 4 additional tumors were located. 5 more were found during surgery. Clearly my tumors are experts at hide-n-seek - a month after my surgery at Mayo I started having hypoglycemia again. We now know from one of the tests there are additional tumors in my pancreas and, as of 2023 my liver. We know what general area of the organs they are located but unable to pinpoint exact location due to small size. On average, I am at Mayo about every 6 months for repeat scans and follow up with my endocrinologist. I have had excellent care at Mayo Clinic.
As for which place to go, that is a very individual decision but I had no concerns at either place with the care I have received. The majority of my care has been at Mayo but if you have specific questions about either place, I will be happy to answer what I can based on my experiences.
Best wishes in your journey!