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@celia16

@nemo1 ,

I will relay what I have experienced, but I’m not sure how relevant it is. I had several things that led me to believe I had neuropathy, such as a recurring burning spot in one foot….lasted for years. Then after covid I had tingling and burning in my feet and hands (intermittent), with constant slight numbness in both feet. My primary thought it was neuropathy based on symptoms, but the neurologist, after tests said I did not have it. My podiatrists differ in their opinions too, so I really don’t know for sure. So, now months later, most of the symptoms are gone with slight residual numbness, but not the burning or tingling.

I take 2000 units of fish oil daily and have for probably 8 years. I do this for my eye health per direction of my ophthalmologist, as I have type I diabetes. I have no damage to my eyes, though I’ve been type 1 for almost 25 years. My blood sugar control hasn’t always been perfect, so I’m really surprised my eyes are getting better. I do have dry eye. Fish oil is supposed to help with that.

I can hypothesize that either I didn’t have neuropathy and the fish oil helped prevent it or I did have it and it’s almost gone with no stabbing pain, due to fish oil consumption. Lol.

Is there some reason you stopped taking it or that you don’t want to take it? Are you in a lot of pain?

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Replies to "@nemo1 , I will relay what I have experienced, but I’m not sure how relevant it..."

Thank you Celia! 😊

The entire neuropathy befuddles me. I have undeniable neuropathy symptoms, intermittent numbness, stabbing pains, shooting pains, horrible tingling some prickly feelings, feels like bugs or worms wiggling under my skin. It is in the feet for sure, the arm yes. I get stabs of pain in different areas of my body.

The neuromuscular doctor who I don’t see anymore (have a new one I’m seeing in June) said I don’t have it, long fiber per EMG. Neurologist and podiatrist concur neuropathy. The oldest neuromuscular doctor per EMG said I have demyelination thought to be diabetic related.

I have polyradiculopathy severe and chronic in lumbar and neck. I have degenerative disc disease (moderate per 2023 mri of lumbar) some stenosis and neuropathy. My neurologist yesterday said she thought I had single fiber neuropathy as well (with a cherry on top of that cone of ridiculousness). But I would not conclude that unless I had a biopsy. I would not doubt it.

So, diabetes, age, nerves that are angry. the neuro told me yesterday, the sugar is eating the mylen. That jarred me a bit. Understand it. Got me to thinking. She said too that i need to test my blood sugar after meals 2 hours checking for high spikes. So I am doing that and recording my findings.

The odd thing I discovered when looking over my blood sugar readings, that was when I choked on a fish oil pill (the pills the size of a submarine), that was exactly when I went to SHORT ACTING Metformin so that I could crush it and take it with applesauce (can’t crush Long Acting). Side note, I developed a swallowing issue in 11/2021. the reason for me taking the short acting Metformin.

Metformin at least the short acting one has not been doing too great a job at controlling my blood sugar. So, I would like to try something else and give my body a chance to heal.

I also have liver problems. So, I’m not sure if the metformin is not properly processed because of that problem. Thereby having the potential of making the medication ineffective. I would need to ask the liver doctor i guess? I suppose. Unless someone knows?

I have been in the kind of pain that has me crying out. There was no way to thwart it except apply the topical lidocaine ointment. And when lightning strikes, just have to bear it until all the meds and med adjustments take affect.

I am on the max dose of the muscle relaxer, so this is it in my mind. It is helping. I was more comfortable last night. I still had to hang feet off bed to make the feet not trigger worse spasm than I already have. We shall see what cymbalta will do when we pick that up at the pharmacy. We are waiting for all meds to come in and be ready for pick up. I look forward to feeling relief! Amen!

I’m sorry I’m rambling. In answering your question I gave you the long answer.

Thank you Celia for sharing your experiences. I appreciate you and the time!

💜