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How do doctors determine SFN is NOT ALS or MS?

Neuropathy | Last Active: Mar 19 8:36am | Replies (15)

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@bjk3

Hi, @susan0514 and @domiha ~
I can really identify with the anxiety of being without a diagnosis ~ here where I live (Iowa) I waited for many months for the opportunity to make an appointment with a neurologist. As it happened, the consultations I had were with his P.A. (Physician's Assistant) but he performed the EMG at a separate appointment. The referring doctor, my pain specialist, was looking for a possible diagnosis of MS or Parkinson's. I was told that the only definitive test for MS was the brain MRI but unless I missed it, I have not seen that information mentioned in this thread. As it turned out, my diagnosis, based on the EMG, brain MRI and labs was an extension of the axonal-demyelinating sensor-motor peripheral neuropathy that I have been dealing with for several years, now exhibiting more extensively. According to the diagnosis I received, there is an irregularity (my word of interpretation) in the brain which explains my mobility and gait problems which are ongoing in spite of physical and occupational therapies.
I'm not sure if this information is helpful at all but I certainly wish you (and all who find themselves in the midst of unanswered concerns) the very best outcomes of your searches and tests!

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Replies to "Hi, @susan0514 and @domiha ~ I can really identify with the anxiety of being without a..."

It is very helpful, thank you for your kind words!