Thank you Colleen, I realized there is a separate NET group after my post, and tried to repost but it said wait for a moderator.

Well, it was surely found early, sort of. In Sept 21 they did a cat scan and found a baseball tumor in my bladder. Thankfully it was low grade and stage and excellent surgeon took it out. Thank goodness it’s still NED. During covid and things were crazy, but the scan also noted 3 tumors around my pancreas. Unfortunately, I was so focused on bladder care and treatment, the tumors were totally overlooked. My doctor did see them, and they were first thought to be spleenules, but even in 2021 the MRI said not Spleenules. My Primary care just said keep and eye on them, and that was it. Fast forward 18 months and new primary care doctor, who noted instantly three tumors around pancreas, is not bladder related. The last 4 months lead me to today. I have total faith in my my primary and she sent me to a high volume center, with an excellent surgeon. So far, I’m very hopeful for successful treatment with surgery. At least I know now, my PET was clean and the biopsy says slow growing - so real chance to get it out of my pancreas.

I will certainly review the links and thank you for moderating to help others, and for offering support to me. Smiles! Randell