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Small bowel NET and colon cancer

Neuroendocrine Tumors (NETs) | Last Active: Mar 19 2:41pm | Replies (13)

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@bellsina71

I had colon cancer when I was 38 and they did a complete procto collectomy. The removal of everything down there. All I have is a small intestine and I just found out after having a mass removed in my duodenum last year that I have multiple lesions in my small intestine now. I don't even know what they do for this. I'm kind of scared.
I did have a resection of my small intestine last year with the tumor that I had removed. It went fine although it was right on top of my pancreas duct.. They took 17 lymph nodes and all were clear for cancer, although the tumor was pretty large.
When I had an EDG done as a follow-up now this year there was a lesion right where the cancer had been removed. It's not the same cancer because I get these tests done every 3 months that tell if the cancer is coming back, so this is completely different. It's high grade displaxia.
A lesion with high grade dysplasia but I had the pill camera and have multiple lesions. I'm not even sure what that means. I'm not sure what they're going to do. I am so scared!
You're going to do fine though with the resection. You might be in some pain. It's just a matter of getting around and walking around.
I wish you all the best!

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Replies to "I had colon cancer when I was 38 and they did a complete procto collectomy. The..."

Take a deep breath if you can. You have a lot to process. Is there a game plan yet for your treatment? Like maybe the next step? I have learned that I can only process things one at a time.