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Looking for more info on what this head CT means
Brain & Nervous System | Last Active: Mar 18 7:43pm | Replies (6)Comment receiving replies
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8594273/
It looks like the dysplasia is the most benign type of lesion in the calvarium but that is a lay person's quick read and your doctor will explain.
In the table here (scroll) it is listed as benign. Fibrous dysplasia is defined by the ground glass appearance.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6206383/
Salient features of benign skull lesions on CT and MRI
Skull lesion CT MRI
Fibrous dysplasia Typically homogeneously sclerotic with “ground-glass appearance”. Variable signal depending on amount of mineralised stroma and fibrous tissue. Most commonly hypointense on T1 and T2.
Lobulation involved dents or lobules formed.
I have the same exact symptoms. I had a CT but without dye. They were looking for an acoustic neuroma and I have also been diagnosed with trigeminal and occipital neuralgia, which in my opinion don't fit. The numbness is from behind the ear on scalp across face and includes left eye and left side of nose (which is also twitching).
Did you have dye for you MRI? I am actually glad for you that a diagnosis was found. It is hard chasing a diagnosis and I gave up. You have inspired me to try harder. My neurologist is a little, er, laid back. We are like friends after all these years. My tells me to get another neuro and go out for coffee with this one 🙂 Good luck with this and let us know what happens!!
Replies to "https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8594273/ It looks like the dysplasia is the most benign type of lesion in the calvarium..."
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Your symptoms sound similar to mine. My nose doesn't twitch but I get periodic stabs in that area that don't last long. My left eye was twitching last week. Did you test your B12 levels? After my doctor said that B12 levels cause that, I talked to some others who told me of people they knew who had the same thing happen to them with low B12 levels. I was good with the diagnosis stopping there. Or if the neurosurgeon could at least call and tell me what they see after reviewing the results, that would be helpful. But, I also understand they are probably busy and short-staffed and can't get to everyone as quickly as we want them to.
My test CT was without dye. I talked to a friend of mine who had a 15-year-old son recently pass away from brain cancer, she wasn't familiar with fibrous dysplasia but said the next step may be an MRI with contrast. That may go in sync with what sb4ca said above where they would see the soft tissue info on an MRI.
Waiting is the worst, my mind is running rampant.