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Unknown illness

Autoimmune Diseases | Last Active: Oct 29 7:56pm | Replies (48)

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@thisoldewe

Hi supernat10,
You have been through so much, and we are all hoping for some spot-on diagnostics for you. Finding the right team of doctors who understand what you are experiencing is vital in knowing 'how to go forward'.
You have received some great advice. As Becky has stated, I would add encouragement for you to get a thorough examination by an eye specialist. Double vision, which can be on and off, can be an important sign of autoimmune disorders. Although it sounds scary, it might be a good direction to get Muscular Sclerosis taken off the table.
Please let us know how you are proceeding. It is a battle to get to the correct 'label'; but it is so necessary to begin the treatment to assist you in living your best life.

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Replies to "Hi supernat10, You have been through so much, and we are all hoping for some spot-on..."

Thank you, it means a lot. I feel like I've been struggling to find a proper diagnosis for so long now, it's debilitating. I am seeing a neuro eye doctor actually. He did several balance tests, and I failed those, so have to go back in for more balance testing next month. He didn't really have a reason nailed down for the double vision yet. I have also suspected MS. My laundry list is so long I didn't include it in the original post, but I've had or have: double vision, brain fog, fatigue, chronic cough, trouble with breathing deep, random pains above my waist all over, pins and needles in both hands, muscle spasms/twitches random places, vertigo (only when I lay back), pulsatile tinitus, and weak muscles when I stand up after sitting a while (feel like I'll fall over sometimes although I never have). I also forget a lot and can't think of words often. I went to Harbor Freight with my son yesterday, and we were inside the store not more than a few minutes, and I had to ask him where we were, because I couldn't remember the name. These don't all come at once, but have been present over the years when I go through these flare ups. I had a brain MRI a couple years back due to these, which was normal, but have never had a spine MRI. My neurologist didn't think it was MS, because I still have good control over my muscles. I'm also aware that many people suffer from MS limbo, and I wouldn't be surprised to find that's what I've been in. I'm hoping it's not that, but finding out it was would be a relief.