Replies to Twelve years! I hope it has abated and that you are pain free.

← Return to Confused about PMR symptoms

Discussion

Confused about PMR symptoms

Polymyalgia Rheumatica (PMR) | Last Active: Mar 19 7:21pm | Replies (34)

Comment receiving replies

@nancy53

Twelve years! I hope it has abated and that you are pain free.

Jump to this post

Replies to "Twelve years! I hope it has abated and that you are pain free."

DadCue | @dadcue | Mar 18 12:20pm

Technically, I still have PMR and it has now been 16 years. PMR abated four years ago when Actemra (tocilizumab) was tried. I'm currently being treated with a monthly infusion of Actemra.

I got off Prednisone entirely two years ago and I'm relatively pain free. Getting off Prednisone was difficult but so much easier after Actemra was started. It took me nearly 2 years to get off Prednisone because of adrenal insufficiency from long term Prednisone use. Actemra isn't suppressing my adrenal function like prednisone did.

VIEW AND REPLY