Technically, I still have PMR and it has now been 16 years. PMR abated four years ago when Actemra (tocilizumab) was tried. I'm currently being treated with a monthly infusion of Actemra.

I got off Prednisone entirely two years ago and I'm relatively pain free. Getting off Prednisone was difficult but so much easier after Actemra was started. It took me nearly 2 years to get off Prednisone because of adrenal insufficiency from long term Prednisone use. Actemra isn't suppressing my adrenal function like prednisone did.