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Evenity Side Effects

Osteoporosis & Bone Health | Last Active: May 20 11:26am | Replies (227)

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@donlynn

I was just told I need to start Evenity . I am so scared since I have neuropathy in feet from chemo ( finished in Dec of 22) , severe joint pain ( whole body ) from the hormone blocker, and am never ending headache .. I can’t imagine yet another side effect .

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Replies to "I was just told I need to start Evenity . I am so scared since I..."

@donlynn I wonder why your docs are choosing to prescribe Evenity. Have you discussed this choice with them?

Usually those of us doing aromatase inhibitors for cancer are put on a bisphosphonate, often Reclast. Have you been on that? If your DEXA scores are worrisome, perhaps the docs want a bone builder. You could try Tymlos, which helped me a lot and side effects were manageable because the daily shots have an adjustable pen and you can start with a low dose and move up to let your body get used to it. (Try full dose first though.)

You could try Evenity once. Evenity is two shots and after my first time, I declined the second shot and only had one to see if I could reduce side effects.

I also have a history, in my case, of paresthesias, facial numbness and so on but Evenity did introduce some new symptoms. I hope you can talk to your doctor about your situation or even call Amgen.

I hear you about side effects over time. I did years letrozole for cancer, two years of Tymlos and 3 months so far of Evenity, then it will be Reclast. It's hard.