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DiscussionHow do doctors determine SFN is NOT ALS or MS?
Neuropathy | Last Active: Mar 19 8:36am | Replies (15)Comment receiving replies
Replies to "@sb4ca THANK YOU! Reassuring words mean a lot! I've always been a glass half-empty type, so..."
Mike, I'm sure you've put yourself on a waiting list/calendar with a good neurology practice, but don't be afraid to check in and see if they've had cancellations. Here in Chicago I was told the soonest a Northwestern-associated neurologist could see me would be late July, so I made that appointment but put in a call to Rush. A cancellation happened to have just come in two days away, so I juggled everything at work and grabbed that appointment. I'm glad I did - the neurologist I saw was impressive and will be doing an EMG/nerve conduction test at Rush in early April.
Ordinarily I would also have had to wait until July to see a neurologist at Rush as well, it was a triumph of sheer dumb luck.
I know how hard it is to wait and worry - the sooner you can get that appointment on the books the closer you are to testing, a diagnosis, and a care plan. Sending you all my very best wishes for reassuring news for you.
I'm glad I was able to give you some reassurance. I think when you are able to see a neurologist they will conduct the full scope of testing but surely your upcoming appointment will also provide a better understanding of the possibilities. Apparent the biopsy used for the diagnosis are from both the leg and the thigh. Is this what you had done?