I have been diagnosed with pNET in December 2022. Grade 3 (Ki=18) with liver metastases (Stage4). I underwent distal pancreatectomy/surgery for that (alongside with total hysterectomy for endometrial cancer). Mine was 'debulking surgery', as there were too many small tumors on my liver. I also had spleen removal ( tumor was too close and engulfing the head of the pancreas and the spleen), and gallbladder removal. In March 2023 I started Somatuline/Lanreotide therapy every 4 weeks. I take Creon as my pancreas cannon supply the necessary digestive enzymes. I also follow high protein mostly plant and fish diet. Just had my first anniversary from my chemotherapy :).
You can reach out to me here or in private if you have questions, or are interested in my experience.