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Treatment for GI NET with liver mets not working: Options?

Neuroendocrine Tumors (NETs) | Last Active: Mar 25 3:33pm | Replies (11)
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@kim1965

Ask your team of doctors if CAP/TEM chemo pill is an option for NET. My wife did 9 month cycles and achieved almost 70% reduction in tumors in liver and pancreas allowing for surgery. We just finished 4 treatments of PRRT, and are being considered for a liver transplant if our PET only shows NET in the liver this summer. Please let us know if any other questions you have, you got this!🙏

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Replies to "Ask your team of doctors if CAP/TEM chemo pill is an option for NET. My wife..."
Turkey | @tomrennie | Mar 22 12:15pm

I also had similar results on CAP/TEM with my pancreatic NET with liver metastasis. Every thing shrunk including "innumerable" lesions on my liver. Keep trying. Something WILL work. Keep the faith and keep asking questions here. We are all there or have gone through the process of learning what works for each of us.

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