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Confused about PMR symptoms

Polymyalgia Rheumatica (PMR) | Last Active: Mar 19 7:21pm | Replies (34)

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@gsm1

I had been on 5mg daily of prednisone for over 15 years for general arthritis. Last August I was diagnosed with possible RA and was prescribed sufasalazine 500 mg tablets on a gradual increase to 2 tablets 2X daily while decreasing my prednisone in 1 mg units as the sufasalazine starts working. After 2 months I was able to
Get down to 3 mg of prednisone but I had an attack that was so bad that my shoulders,hips, legs and right wrist ached so badly that I couldn't move without hurting. I will also note that I play Pickleball about 3X weekly. I am 74 years old. I had to go to 25 mg of prednisone for several days and then tapered to 15mg for 1 week and then down to 10 for one week and then back to 5 mg. In late December I experienced another attack like my last one and my rheumatologist now thinks my symptoms are more characteristic of PMR. So I went back to 20 mg of prednisone with no sulfasalazine but for a week I was still hurting too much to play Pickleball so I added the sulfaslazine and after a few days I was back to normal. My doctor also gave me 1 mg prednisone tablets so I can reduce my prednisone gradually at my own pace as I see fit. It's been two months and I am down to 12 mg of prednisone.

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Replies to "I had been on 5mg daily of prednisone for over 15 years for general arthritis. Last..."

Welcome @gsm1, Those 1 mg prednisone tablets do help for tapering in smaller amounts. It sounds like you have a great doctor that listens and works with you. My rheumatologist also gave me scripts of 2.5 mg tablets along with the 1 mg tablets that helped when I got below 10 mg.

Have you made any lifestyle changes to see if they may help with the RA ad PMR? Do you keep a daily log with pain and dosage for tapering?

That’s interesting that you started to feel better after adding the sulfasalazine back along with the prednisone. Does your rheumatologist think you might have both RA and PMR? I hope the taper continues on smoothly from here.