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Did anyone have a missed diagnosis of NSCLC?

Lung Cancer | Last Active: Apr 30 10:30am | Replies (82)

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@abob

Thx for your thoughtful reply.

Dx was Lower left lobe Moderately differentiated adenocarcinoma, invasive. Had Lobectomy, clean cut, nodules above and below clear. Surgeon and Pulmonologist said “good”, no chemo or radiation necessary.

PCP said see oncologist, who said do 4 course of chemo to eliminate any wayward cancer specs After 2nd chemo, Oncologist ordered follow-up :
- CT - showed new mass in left adrenal gland.
- Pet CT - adrenal lit up.
- MRI - new mass suggestive of metastasis (but tiny tumor is not viewable on slides - it’s inbtwn slices).
- Biopsy - “not malignant”. Surgeon said since mass is so small, perhaps needle missed cancer cells.

So we don’t know if/not/same/cancer:
- Is this mass cancerous?
- Will remaining 2 “lung” chemos work on this tumor?
- If not, are we wasting time not doing surgery bc this tumor could spread? But shouldn’t remove a non-cancerous adrenal gland.

Plan is based on not knowing exactly what this is, going on assumption it’s metastatic lung cancer tumor:
- Do blood tests to see if adrenal gland is functioning.
- Finish chemo
- Do CT and/or MRI
- if still any mass, get Adrenalectomy.

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Replies to "Thx for your thoughtful reply. Dx was Lower left lobe Moderately differentiated adenocarcinoma, invasive. Had Lobectomy,..."

Wow! Well at least it’s tiny. I hate all the unknowns! They wreak havoc on a person! Well, I will hope for the best for you and your husband! I pray it is not cancerous! I believe there is also an adrenal cancer group on this Mayo connect. Or just under the Cancer group. I know I’ve seen some questions on it. Might be helpful? God Bless you both and He is always with you!🙏

Tough stuff. What hospital? Can you get a second opinion?

Hi..
thinking of you both tonight. Has the chemo for the lung mass had any impact on the adrenal Mass?