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DiscussionLichen Sclerosus: Any other women dealing with this disease?
Autoimmune Diseases | Last Active: 4 days ago | Replies (323)Comment receiving replies
Replies to "As an RN, I am wondering if a peri bottle used by post partum women for..."
@cantek Thanks so very much for these suggestions. I was given a squeeze bottle (the kind with the up/down cap, this one had 3 small holes in the cap for squirting) after the surgery, along with a "sitz bath" hat-like plastic thing that you can use on the toilet for warm water/steam relief.
Fortunately, a nurse advised post-op by email that the bottle squirted at/after each bathroom visit could replace the sitz bath, which seems so very cumbersome. So the bottle is what I used. (And up until recently I've carried it with me, along with other supplies AND vaseline to all activities outside home).
I did ask ahead of surgery to have great care exercised so the urethra wouldn't be compromised, altering the anatomy & any subsequent issues from that. I wanted to avoid any need for a catheter at home, and possible infection. But, after what I went through, if the catheter had been an option to avoid the excruciating acid-like pain of urination in the first 3+ weeks, I might've opted for it.
I hope that won't be necessary this time around with the 1-inch biopsy. As I might've written in a previous post, if this is all toward avoiding cancer, and is geared toward healing and getting back to "just" managing the LS with clobetasol, it is worth it. If this were something that would be for the rest of my life, I'd have to dig deep to figure how to live my life with it.
Thanks again so much - with all the prescribed creams & ointments (lidocaine, diphenhydramine), sprays (Dermaplast) & oral medications (Allergy medication orally like dyphenhydramine) I've been suggested to try, all that has really helped is Vaseline, and in these later stages, it doesn't remove the itching phase, and even adds to the discomfort with the stickiness at times.
Again, all in the hope of helping others with information and experience, non of which I had the benefit of this time - but the posts and support here are the best, and give others the best chance of getting better control, if not relief, over this insidious condition.