← Return to Anyone out there with Autoimmune inner ear disease (AIED)?

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@montsebarcelona

Hello,
I was diagnosed with autoimmune ear disease 4 months ago, but I have been suffering from the disease for two years. First they based it on the fact that it was Meniere's, but finally they tested me for cochlear antibodies and they came out positive. No other autoimmune disease came out. The symptoms I have are the same: a lot of pressure, fluctuating hearing loss (now it's been 4 months and it doesn't fluctuate anymore), I have a loss of 60db in bass, and horrible tinnitus 24 hours a day, 7 days a week. These two years I have been taking corticosteroids and intratympanic punctures without good results. Now I am on cortisone 10mg and methotrexate 10mg once a week. It has been the
fourth week of the dose and so far no improvement. The doctor tells me that it takes between 6 and 8 weeks to take effect. Do you know if it is true that it takes so long to know if it will take effect? I am very discouraged since I have lived with only one ear for 11 years, since I completely lost the left one in an intervention. And now I find that my only listening ear is failing me. They have already put me on the waiting list for a cochlear implant for my left ear, but living like this with all these symptoms is really becoming difficult for me.
Thank you very much for all the comments, I am glad to know that I am not alone in this fight.

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Replies to "Hello, I was diagnosed with autoimmune ear disease 4 months ago, but I have been suffering..."

@montsebarcelona Welcome to Mayo Clinic Connect! I am very sorry to hear about all your problems with AIED. This site is a great place to share with others who are dealing with the same problems. I’m going to ask members @tinae @willows @poc1115 @needanswers7 if they could join the discussion and help you out.
I’m glad you found the Hearing Loss group. They may also help with your problem.
May I ask how you found MayoClinicConnect?