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gailfaith (@gailfaith)

Myotonic Dystrophy type 2

Bones, Joints & Muscles | Last Active: Oct 15, 2016 | Replies (20)

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Hi @gailfaith and @jmbjar I was thinking about you. Jmbjar we haven’t heard from you in a while. Gail, how are you doing?

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Replies to "Hi @gailfaith and @jmbjar I was thinking about you. Jmbjar we haven't heard from you in..."

Hi Jmbar and Colleen…
I am hanging in there. It has been a tough year for me so far……3 surgeries (one at Mayo) , a concussison, a kidney stone and now waiting for a shingless attack (my 3rd, and first since vaccine!)to stop bothering me even though the sores are mostly gone. I tried taking Valtrex and a few days later gabepentin, but when I saw the side effects were the same as the Valtrex, I stopped both. The side effects were worse than the disease for me. Hopefully the rest of the year will be boring health wise. @ gailfaith

Hi Colleen

I now have been informed that my renal/kidney function is declining. Apparently have been for some time now that I have copies of test back a few yrs. 10 month waiting list to see a kidney specialist.
Not related to the normal causes such as high bl press nor diabetes, so I highly suspect do to long term hyperparathyroidism.
My bio Mom passed from renal cell cancer , so of course this is also in the back of my mind

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