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@franie

I appreciate everyone’s comments . In 2011 I started treatment for MAC infection . I had symptoms and difficulty breathing for three years and seeked help , but, none of the Dr’s every even tested for it as my labs never revealed infection yet I sweat all over through nights and was very tired . Finally my internal med Dr ordered a bronchoscopy but it took so long to get results back . Then they tested my gamma globulin and it was in the basement . I went to Mayo for testing as well and it took five months before the C&S came back. I started with monthly infusions of IVGG but went on IV Amicacin IV Moxacillin for 60 days followed by Floxin once a day Clarithromycin twice a day , Ethambutol once a day by for eighteen months . I used saline nebs as needed and needed to stop the Ethambutol after one year due to vision problems . It has been about ten years since completed med regime . I was blessed to be able to tolerate the oral Clarithtimycin . I have lung nodules in upper and middle and upper lower bed to the rt lung. I’m doing great now . I’m get IVGG every six weeks yet. I had bilateral mastectomy with implants which Drs thought caused my immune system to react and I had them removed at Mayo. I no longer need to do nebs and I was so thankful to finally get the antibiotics and consider myself lucky that there was treatment available and highly would have not survived without the meds.,It would have continued to form more nodules and destruction of my lungs without . Upset it took Drs so long to believe
Me and do a bronchoscopy . I would give the antibiotics and if you have untoward side effects then re evaluate treatment but I do know that I would have died without treatment. Good luck

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Replies to "I appreciate everyone’s comments . In 2011 I started treatment for MAC infection . I had..."

Frankie, my experience is very similar to yours. I totally agree with the antibiotics and bronchoscopy ,and yes, they saved my life also.