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← Return to Severe lumbar nerve pain
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I was never diagnosed with scoliosis. Rather - it was stenosis which I managed for decades with exercise, use of NSAIDs, and occasionally a bad stretch of pain.
When I started experiencing sudden-onset dead leg I grew concerned about personal safety. What those MRIs showed was advanced stenosis throughout my entire spine (I saw the pictures myself) with some subluxation which was the root of the dead leg situation.
The spinal column degeneration was so severe and so pervasive (the entire spin...) the doc wanted to decompress and fuse about everywhere. After researching, I decided to do about half the job and cross my fingers that would be enough.
As for future progression? That is unknown and unknowable, I believe. The degradation (over the past 30 years) has been non-linear. Might degradation slow? Or stop? Or accelerate? No one can accurately make that sort of prediction.
What sort of docs are you talking to now?
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I'm seeing the ortho who did my cervical fusions. In a follow-up appointment, maybe a year ago, I showed them my waist which was really deformed and honestly had shocked me. One side was sunk in and the other completely straight. They did x-rays and told me I had scoliosis. I had no symptoms. I had previously been told I have severe degenerative disc disease. Any time I have imaging done for other reasons, a radiologist will point DDD out. But I can easily feel an abrupt shift of vertebrae in my lower spine. Concerned the symptoms came on so suddenly. For an all together different reason, I was given prednisone last week. That absolutely helped calmed some of this down and I'm taking that as a good sign. But I am taking your experience very seriously and if conservative measures don't work, I would like to see a physiatrist. I can also go back to my neurologist and ask if the NCT's would be beneficial. I suddenly have started having bilateral carpal tunnel pain that is waking me up. I had it so severe in my right that I had to have surgery about 20 years ago. And my neck has continued bothering me. I feel like my entire right side of my body is in pain lol. I have a bad sinus obstruction causing pain in my face on that side too