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Does anyone suffer from Crohn's or colitis?

Autoimmune Diseases | Last Active: Nov 17 8:48am | Replies (111)

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@busyyaya

I haven’t seen any diets for UC with overwhelming evidence to decrease inflammation/remission? I think I read a meta analysis review of multiple evidenced based studies not showing any significant evidence. Seems it’s highly individual responses. I really wonder if there was compliance issues that decreased the evidence? I’m still experimenting feeling sick on most everything most likely related to the stress of my doctor telling me I’m playing with fire not having a total colectomy with a 55 year history of UC. I’m not ready to lose my entire colon. I’d agree to a partial of problem area in descending colon but not all. I’m so upset I think it’s making me worse. I don’t want a permanent ostomy as I don’t think that will stop the storm inside of me with all the extra intestinal symptoms I have. I feel like I want to get to a root cause analysis of the immune response so I’m going to a functional medicine Dr to see if there are any other options.

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While you are at the functional medicine doc, see what he (she) thinks about Low Dose Naltrexone for handling inflammation. It has been a God-send to my woes. (First diagnosed with UC in the begining 80s and then changed to Crohn's in the 2000s.) I started LDN in 2019 while I was having small ulcers in my small intestine. LDN helped me heal and get off Entacort. I have been on LDN ever since and have had 2 normal colonoscopies in a row. (Total of 3 yrs, or longer depending how you count things.) I do not take any medication for my Crohn's except LDN.