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Severe Back, Groin, Hip pain

Bones, Joints & Muscles | Last Active: Mar 26 8:44am | Replies (23)
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@michelle10

I was just diagnosed with pagets in my spine and 3 ribs. I hurt all the time. I live in the US. Trying to find dr who can help. I am going to physical therapy to keep moving.

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Justin McClanahan, Moderator | @JustinMcClanahan | Mar 18 9:19am

Hello @michelle10, welcome to Mayo Clinic Connect. I thought you may also want to check out this discussion since you mentioned having Paget's:

"Paget's disease of the bone and other inflammatory issues" -https://connect.mayoclinic.org/discussion/pagets-disease-of-the-bone

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omnipair314 | @omnipair314 | Mar 18 10:02am

My husband was diagnosed 2+ years ago with Paget’s, we live in Illinois and he sees Dr Reddy Hinsdale Illinois
She has helped him tremendously.
He has an infusion of Remicade twice so far and now we are on year 3 with no need to infuse. His pain is well under control and his bloodwork is well within normal range now.
His Paget’s is in hip right hip and 3 spots on his ribs. (One new spot last year on his 8th rib rear is new but minuscule in size comparison to his hip) I pray this information helps you!

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