What would you do? Medication.
Hi, I am interested in lay people opinions given I have received so much conflicting advice from MDs. It’s astounding and I’m sure I am not the only person who is confused and wary about any decision I make.
I am 68 years old and have significant OP – my T score is a -3.5. I was diagnosed in October. I knew I was genetically predisposed so have regularly exercised since my 20s and have maintained a healthy diet. Since the diagnosis, I have upped the frequency of weight lifting and the use of resistance bands and I am doing what has been advised in terms of diet and supplements.
My Plan D insurance will only cover Prolia and Forteo. I have decided against Prolia and am reluctant to start Forteo. Backing up a little, I enjoy adventurous vacations such bicycle trips and strenuous, long hikes. In September, for example, I hiked a portion of the Camino de Santiago. While training, I slipped and fell three times on big rocks and didn’t break anything. Last year, I took a bicycle trip in Europe. I tried out an electric bike which got away from me and I took a hard fall – it hurt, but no fractures. I know that my bone density is low as reflected by my low T score, but I also believe the quality of my bones is good, and the DEXA score is only part of the equation. One of my doctors said, “Oh, you did your own DEXA test.”
Like everyone, I want to avoid a fracture more than anything so I am willing to consider Forteo, but here is my concern: Is there a chance I might hurt the integrity of my bones by going on it? Might I inadvertently worsen my own situation by taking medication just to improve my DEXA score?
I also want a life plan that needs to last maybe 30 more years. We take a medication for a year or two, then switch to another medication for a year or two. Then what?? None of the MDs I have talked to have had a satisfactory answer. Maybe they are waiting for new drugs to hit the market.
I’m really struggling with the decision. I know I am the only person who can make it, and I will have to be responsible for the outcome, but I would really like to hear what thoughts others have. Thanks so much - any input is welcome.
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He could have easily done a quick blood test or Doppler to see if you truly had blood clot. Better that you didn’t take birth control because if you read, they may not have been good for bones during formative years since they suppress natural cyclical levels of hormones from my understanding.
And, likely synthetic, oral hormones could have caused clotting problems unlike transdermal. Science evolves.
As I recall, he palpated the area and made a declaration.
Some similarities in our stories. I also backed off supplemental estrogen because of the stupid Women’s Health Initiative. I feel like I missed a valuable window of time. I’m advising my 40ish daughters to think about HRT when the time comes. Meanwhile, got a script for tymlos but denied by insurance and Medicare, so we will fight that battle.
Right now I am dialing in nutrition and doing a progressively heavy lifting workout with a trainer.
I’m sure insurance will want me to start with a bisphonate, but there is evidence that it makes the anabolic not work as well.
Asked my endo for a TBS, don’t think he knew what it was. Not a lot of medical choice on the Oregon coast.
Good luck to you on your journey.
Also, thanks for the link to the estrogen book. I will look it up.
Wow! And, big difference between superficial and DVT. Some medical advances have been helpful! 🤗
I’ve always read that HRT is risky if not started within ten years post menopause. Have any of you started down this path much later than that, even twenty years? I think I would be just as fearful doing hormones as I would doing bone drugs, although it makes a bit more sense to add something back in that is lacking rather than add something entirely foreign. I haven’t really considered this option, since I never had any need for HRT when going through menopause twenty years ago. But I am exploring ALL options now, since last week’s DEXA showed further decline in lumbar from -3.2 Tscore to -3.7. Hips are stable and not osteoporotic from two years ago. I need to add that I have not had breast cancer myself, although I lost a sister to it many years ago.
@sallyj2 my DEXA reports say not to take femur neck into account when measuring change. Not sure how to reconcile that with what was written above.
I have low blood pressure: last systolic was 94. I coped with Tymlos pretty well but started with a low dose and move up. Hydration helped.
I have read about relative risk but I can say with certainty that I had a 20% gain on Tymlos in my spine (and we excluded my fractures), and went from severe to borderline.
Everyone makes their choices and I agree the 1 in 8 women getting breast cancer is affected by age- older women are more likely to get it. I just hope that those taking HRT stay healthy that's all.
Your comment means a lot. I am 77 and also not medicating. I am trying a year of a more natural snd dedicated approach with walking a minimum of 30 minutes a day, osteoporosis exercises, use of weights, supplements, bone collagen, and bone building diet. The doctor recommended Evenity since my lower spine showed -3.3 but said he completely understood my decision. I will have another bine density scan in a year and see what happens. We have to each do what feels right for us.
What drug did you transition to after prolia?
How old are you and how many years post menopause? I am exploring this too. I am almost 76. Early menopause at 39.