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@kjwalkercidp

I'm surprised they haven't ordered a lumbar puncture on you yet. I don't think CIDP and some of these other immunological disorders can be properly diagnosed without it. I could be wrong, but it seemed to be the most telling.

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Replies to "I'm surprised they haven't ordered a lumbar puncture on you yet. I don't think CIDP and..."

I have been bounced around from doctor to doctor and have had many tests for over 7 years (a lot of time and money spent to try to get answers for my declining health and quality of life).
One doctor even made me feel (and put it in my medical record) it was all in my head so I “fired” her. No doctor ever suggested a spinal tap. Autoimmune diagnoses seem to still be so far behind and many people are suffering.

The only diagnoses in the last 7 years to my constellation of full body symptoms have been (in order): congenital spinal stenosis, degenerative disc disease, spondylitis, hearing loss (left ear), idiopathic small fiber neuropathy, iron deficiency, dizzy while walking and fell breaking my right foot, cervical spondylitic myelopathy (c5c6), thyroid nodule/micro cancer/Hashimoto’s thyroiditis/hypothyroid, and recently biliary dyskinesia (gallbladder not functioning). My hope is a new neurologist will look more closely at the potential for MS or CIDP to help stop or slow down my fast decline and provide treatments to help improve my ability to function some. My quality of life is gone, I am a 54 year old single parent of a 14 year old son and I have no extended family/support. Scary!