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CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Autoimmune Diseases | Last Active: 1 day ago | Replies (333)Comment receiving replies
By the way, as a note to all as I'm new here....I am an American who has been living in Asia for the better part of 25 years. I am current in China, which is not exactly a hotbed for CIDP study so getting diagnosed and now treated is a bit challenging. I recently stopped work because I just couldn't get there and back easy enough this past year. I have weakness, but I think the over arching issue for me is balance, which I seem to have none. Without touching something while walking or even standing.....I'll go down.
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Replies to "By the way, as a note to all as I'm new here....I am an American who..."
Physical therapy is important with CIDP. I’ve had it every two weeks since I was diagnosed in 2021. Working on strength maintenance and balance. I have found it very useful.
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I, too, have worsening balance issues and eye pain/blurriness periodically. I am definitely going to talk to my doctor and MS and CIDP. I also have fallen so try to be very careful when I stand up, use stairs, etc. Thank you for suggesting getting the spinal tap in addition to MRIs/nerve studies/scans.