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@dlydailyhope

I believe autonomic nerve damage impacts body temperature regulation. I have idiopathic small fiber neuropathy confirmed with punch biopsy in 2017. In addition to spinal stenosis and cervical myelopathy (had ACDF surgery), I have started to notice significant CNS/PNS decline. It is like my brain and body are not communicating properly or quickly. Everything seems to be slowing down. I can’t get in to a new neurologist until the end of April for updated EMGs (upper/lower), nerve conduction studies, and brain MRI. My symptoms seem to be pointing to MS. I have seen different rheumatologists and RA/lupus was ruled out. There are times I suddenly get really hot, sweat or very cold. I ask others around me if they are hot or cold and they aren’t experiencing the same temperature discomfort I am. Excessive heat really bothers me. How were you diagnosed with CIPD? Should I ask my neurologist about CIPD? I seem to have pain, numbness, weakness, etc. all over my body. Thanks!

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Replies to "I believe autonomic nerve damage impacts body temperature regulation. I have idiopathic small fiber neuropathy confirmed..."

@dlydailyhope I was diagnosed over a one year period AT LEAST. I went to five different neurologist during that time and each did their own EMGs, scans, blood work, while two of them did spinal taps. The spinal taps are what honed in on the CIDP something to do with protein levels and the absence or presence of this or that. As you know by know it gets quite complicated down at that level. Anyway, my final diagnosis from a really trusted neurologist is MGUS with CIDP-like symptoms. Well to me, it's just CIDP.

K