← Return to CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

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@kgitti

New here and to the Mayo forum in general. I was first misdiagnosed in 2020 then properly diagnosed in 2021 CIDP/AMSAN.
Yes first IVIG for about 2 years and now SCIG for a year. With occasional prednisone runs orally after a cold or flu or Covid.
I’m 73 and not retired. I’m a photographer/artist and do dog agility at a championship level. The treatments have given me a life albeit somewhat limited. I have maybe half the energy of a healthy person my age. Do to a bureaucratitic problem I went without treatment for 6 weeks during the switch from IVIG to SCIG so I know how much I gain from it.

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Replies to "New here and to the Mayo forum in general. I was first misdiagnosed in 2020 then..."

Welcome @kgitti, It sounds like you are still able to do what you love which is a plus for a lot of us with chronic conditions. Have you found anything else that helps provide relief or gives you more energy?