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Does anyone suffer from Crohn's or colitis?

Autoimmune Diseases | Last Active: 5 hours ago | Replies (109)

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@lam3

50 years with Crohns . CAT, MRI, Colonoscopy all show no inflammation. High level C-Protin in blood work and still have diarrhea, at times uncontrollable.
Has anyone experienced?

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Replies to "50 years with Crohns . CAT, MRI, Colonoscopy all show no inflammation. High level C-Protin in..."

Welcome, @lam3. I moved your question to this existing discussion:
- Does anyone suffer from Crohn's or colitis?
https://connect.mayoclinic.org/discussion/does-anyone-suffer-from-chrons-or-colitis/
I did this so you can easily connect with others like @blu15 @fionah @jer22 @kayabbott @exitframeleft @alfresco @jgkc23 @busyyaya @suetex who can share their experiences.

Using search, you can find additional discussions on IBD and Crohn's disease. https://connect.mayoclinic.org/group/digestive-gastrointestinal-problems/?search=Crohn%27s&index=discussions

@lam3, did you recently have a C-reactive protein test that is showing abnormal results? Is the uncontrollable diarrhea a new symptom?

I don't have Crohns, mine is collagenous colitis (7 years) (aka microscopic colitis because it can only be diagnosed by microscopy of biopsies). My colon is normal otherwise. If I have a flare I have about 2 min to find a bathroom before my GI water balloon pops. I've kept a food log since diagnosis with celiac 14 years ago. I can control flares with diet; no gluten or NSAIDs, and minimal legumes, along with the usual healthy diet, exercise, enough sleep, and especially avoid stress. My GI bloodwork is fine if I avoid the stressors/food. My last flare was September; I was taking baby aspirin for a few days due to long covid cardiovascular symptoms. The flare went away after stopping aspirin.