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Arachnoiditis: Trying to find a specialist

Spine Health | Last Active: Mar 31 2:11pm | Replies (325)

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@davelt1033

I too have many of the same debilitating side effects that were brought on after epidural that was supposed to help relieve pain. I am at my wits and the pain is constant 24/7. Is there any help that can be had? I am certainly willing to do just about anything but I will not do cervical spine surgery that will be more debilitating. Because I am already a quadriplegic and all I have is above the shoulders. Please recommend help Help! Anyone!! Pain in my head, neck, and shoulder, fatigue, vision impairment, memory problems, mood swings, depression, etc...

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Replies to "I too have many of the same debilitating side effects that were brought on after epidural..."

@davelt1033 @jarhead

I had a Burst DR spinal cord stimulator implant two years ago for sfn burning pain in my feet and numbness and tingling up to my knees. It initially gave me 80% pain relief. After 18 months it gradually decreased its effectiveness, and now it's still helping with the pain at night time but it's doing very little during the day. Morphine, Klonopin, Imipramine, Meloxicam and Tylenol do most of the work. It would be really nice if the stimulator would maintain its efficacy for a longer time. Now I'm pursuing the option to switch to a dorsal root ganglion stimulator implant. Trouble is it's kind of the last resort treatment. The DRG specialist wants me to hold off as long as possible, and she's working with the man who makes the adjustments to the SCS. Meanwhile, the pain continues to mount. Frustrating, isn't it?

Jim

Please research taking Kratom. It is a powdered leaf coming from SE Asian trees. Buy the slow strains of it at Happyhippoherbals.com Add it to water, and swig down as fast possible, because it is lousy tasting. However, it is the one thing that does help nerve damage pain. It makes you feel mellow, and takes away all pain for about 4 hours or so. Not all Kratom is alike. The wrong strain may not work, and there is lousy stuff on the market. So shop Happyhippo. The stuff is addictive, so take it every other day. I will tell you more about it if you are interested. True pain relief. That is why people fight for Kratom. Lori Renee