What would you do? Medication.
Hi, I am interested in lay people opinions given I have received so much conflicting advice from MDs. It’s astounding and I’m sure I am not the only person who is confused and wary about any decision I make.
I am 68 years old and have significant OP – my T score is a -3.5. I was diagnosed in October. I knew I was genetically predisposed so have regularly exercised since my 20s and have maintained a healthy diet. Since the diagnosis, I have upped the frequency of weight lifting and the use of resistance bands and I am doing what has been advised in terms of diet and supplements.
My Plan D insurance will only cover Prolia and Forteo. I have decided against Prolia and am reluctant to start Forteo. Backing up a little, I enjoy adventurous vacations such bicycle trips and strenuous, long hikes. In September, for example, I hiked a portion of the Camino de Santiago. While training, I slipped and fell three times on big rocks and didn’t break anything. Last year, I took a bicycle trip in Europe. I tried out an electric bike which got away from me and I took a hard fall – it hurt, but no fractures. I know that my bone density is low as reflected by my low T score, but I also believe the quality of my bones is good, and the DEXA score is only part of the equation. One of my doctors said, “Oh, you did your own DEXA test.”
Like everyone, I want to avoid a fracture more than anything so I am willing to consider Forteo, but here is my concern: Is there a chance I might hurt the integrity of my bones by going on it? Might I inadvertently worsen my own situation by taking medication just to improve my DEXA score?
I also want a life plan that needs to last maybe 30 more years. We take a medication for a year or two, then switch to another medication for a year or two. Then what?? None of the MDs I have talked to have had a satisfactory answer. Maybe they are waiting for new drugs to hit the market.
I’m really struggling with the decision. I know I am the only person who can make it, and I will have to be responsible for the outcome, but I would really like to hear what thoughts others have. Thanks so much - any input is welcome.
Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
Reading and watching his videos. Tomorrow I see a physical therapist for the first time, and I also have Margaret Martin's book Exercise for Better Bones. I'm also going to sell my mountain bike and get a vibrational platform, like they use for the astronauts. :p
May I ask a few questions to clarify my understanding of your current treatment choices? On top of estrogen and progesterone, are you currently on Evista also? If so, why? Also whats your estrogen and progeterone dosages if you dont mind sharing? After your tymlos' approval, will you be taking hormones together with tymlos? Why and why not?
Personally I think for those of us who have osteoporosis due to estrogen deficiency, transdermal hrt is a great choice if no contraindications exist. The shifting sentiments towards hrt are palpable. I'm waiting for my clearance.
Accidents happen. If you are that active, it might be a good idea to wind down a bit as you age. With a same t score, the frax risk is higher for a 70yo compared to a 60yo. Severity of impact matters too. One of my childhood friends has good dexa readings (t score at ~ -1s) but had a freaking accident on ice. Her left tibia was broken into pieces. I had slipped at home landing on my back and head 3 years before my dx but was fine. I'm not sure I could say the same should I have the same accident today. Sometimes how we fall also matters, but that's out of our control. Fall prevention is still a top priority. Spine compression fracture may be another story.
Wish you the best!
I was curious about the combo of raloxifene and hormones
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7798121/
I had breast cancer that was fed by estrogen and progesterone. One out of 8 women get breast cancer and 80% of those cancers are fed by hormones. I understand that landmark study is no longer seen as valid, but I do wonder what risks people are taking with HRT after a certain age.
Also @bboon55. it sounds like you had a bad fall doing something strenuous, but your osteoporosis was mild at that point. Lumbar fractures are no fun but I hope your treatment approach makes you safe and pain-free.
It's so frustrating. You didn't mention your age - I'm wondering b/c of the estrogen and progesterone. Yes, seasoned women are easily and readily dismissed. It's infuriating. Glad you are ok.
Great info. Thanks
Most of the posts relate to fractures following a fall and I’m wondering if anyone else has experienced a spontaneous osteoporotic fracture. My 1st one- a left pilon fracture occurred after I walked around an art fair for hours (more walking than usual) on level surface and required surgery. The 2nd one occurred 2 days after the pilon fx surgery when I started to stand up from a chair and fractured my right patella in half (full disclosure that knee had a replacement a year prior). At the time of these fractures I had been on Prolia for 18 months. Was started on Tymlos 3 months later.
@babs10- I agree with you on your choice of Millman!! . I am about to start meds but want to really understand my root causes so I can do all I can to assist my situation and once a hopeful 3years or so on meds , I can be , and stay in a good place with my bone health ongoing into the future. Would love to hear your feedback if you do fly to see her. Good luck!!
windyshores,
Agreed. My doctor calls it the “BLT” - bend, lift, twist.
I am forced to bend snd lift my 17 year old dachshund several times a day. The PT taught me how to do it safely. So far, so good.
My mother had a compression fracture which
hugely degraded the last ten years of her life. Trying to avoid that.
Not sure why you can’t take Prolia, but it helped me for years and I felt fine with no real side effects beyond occasional headache the day of the shot, but not always. Good luck with your new plan and I hope it helps you!
Thank you for sharing this experience and your insight.. I can relate. My trainer reminds me that I also have an 82% chance of NOT experiencing a vertebrae fracture rather than an 18% chance of having one in the next 10 years (I am 71 years old) without medicating.