SFN, has been a major problem for me. The doctors in my location, Charleston South Carolina do not specialize in SFN. I’m allergic to medication‘s for pain. But I too, have been looking into Duke, Cornell, Presbyterian. Someone who could work with the doclocated here in Charleston.
They are doing it all the time now, just have to check insurances. I find the only thing that relieves it is hot for about 20 minutes and then I wrap my feet, ankles and calves with ice braces that I got from Amazon, I keep them on for almost an hour, so I can sleep well. It’s been really bad driving lately because I just moved, SNF can make you also feel a bit of an anxiety because it ramps up in your feet and ankles when someone cut you off, or you’ve been out actually walking for groceries. Anyway, it’s just been a big problem. I studied it, and it seems That it affects the gut, the brain it is outside of the spinal cord, it creates dizziness, or vertigo, your heart, cardiovascular, sweat glands for some people. I only have one parathyroid, and my endocrinologist said the one I depend on because of age, and when doing the surgery they had to take a bit of biopsy just to make sure it wasn’t affected . So they left it but he said it’s been minimized so now I’m doing more of a bit of hypo. I will be talking to him on March 22 after I do 30 pages of labs for small fiber neuropathy. He talked to me about finding a neurologist who treats this and would work with me after I get the labs. Not many doctors do that , and he repeated I am not a neurologist. I am your endocrinologist, but I can see you have stopped asking questions for the last three years. And you never did this. I’ve been with him for almost 8 years.