Arachnoiditis: Trying to find a specialist

Hello, Happy Aqua Therapy worked for you. For me he pressure walking against the water put too much pressure on my spine. I had PT after my fusion 2016 I was sent to Kessler Institute where Superman Steves Reeves was. They were so good. They are in West Orange and Chatham. NJ. I was there for 3 weeks. Dr. Tennant told me that no more can be done. He emailed information to give to my Pain Management Dr..medications I should be on. He is also an Anesthesiologist, It is depressing being told "nothing more can be done for me" Why was I not told of the 90% of the true meaning of Failed back Syndrome? When the Dr's told me my Diag. They closed the door. If I knew I would not have gone on and on and on trying to find Drs to find out what was wrong me and I was getting worse. No more surgeries, Ablations, nerve blocks and more. The trust I had in their decisions changed my life. I find it disparaging that no one is interested in the in AA and how to make patients aware than, make a decision. I think about that a lot,For me, I can't find any answers? Question, Patients with AA have they seen a change in brain activity. I do't know how to word it. Thank You Joan, my best to you also

In reply to Bforman, I no longer see or look for Neurosurgeons, spine surgeons. The more is done chances of getting worse. There is a Dr. In Calif. Dr. Forrest Tennant. Interest includes AA, he started a Foundation. Some of us are in touch with him. If you live near the NJ areas I have a very Well know Pain Management/Anesthesiologist. Anesthesiologist is a big plus in care. His name is Doctor S. Datta, Pain Management, Hackensack NJ. His practice also includes CancerCare, MS and more. Easy to find him on the Internet. Also can find him, Dr. S, Datta Naltrexone. non-opiate pain medication. He put me on it starting on a very low liquid dose given in an eye dropper. I just started. I hope I can help at least a little for all of you in pain.

Has anybody tried PEMF (Pulsed Electromagnetic Field Therpy? I have a neighbor that swears by it and it'll really help some relaxing sleeping definitely controls his pain but I wonder if anybody has it for AA?

Has anybody tried Pursed electromagnetic field therapy? PEMF. Male wants me to do a stimulator and some doctors I saw said don't do it. Has anybody had any success?

I have A.A. curious what is PEMF?

Kim, I am scared and frustrated like you and I am having a conference call tomorrow with Dr. Pawluck who says he can help with our condition. I have a neighbor who's been suffering with back problems and disc problems for some time and he tried this apparatus and he can't believe how much better he's feeling with 80% less pain and sleeping at night. Increase blood circulation which promotes healing an inflammation reduction. Google his name and you might get some more information and pemf stands for Pulsed Electro Magnectic Field and been around for years as well as NASA USES it for astronauts who have been weightless for a long time and cannot stand the gravity coming back to Earth. Is all kinds of good stories about it and course we're desperate so will try anything especially if we can rent the machine to start off with and some manufacturers say though you can try it for 45 days and it doesn't work you can return it with no obligation. I have that information to. Very frustrating from the Mayo as I sent Dr tenants information to doctors with no response. No research no formula all they want to do is give me a stimulator in my spine which is not recommended at least not now. If you're at the beginning stages now is the time to act. Hope this helps. Don

Hi don, I'm sorry it took me so long to respond! I hope I you waited on your procedure? May I suggest to wait until you hear from Tennant. I have learned the hard way jumping to have procedures done do to pain. What state are you in to look up Dr. Pawluck so I can look him up. I know you went to the dr. but did you have the procedure or waited?

Hi Kim. I don't know what you mean by procedure as I am looking into this pemf and this doctor Pawluk who is a real Guru on these machines has a website and he talks about depending on your condition what's treatment would be better for you with this condition. He has never treated anybody with a a so there's no testimony but he feels strongly that his machine would cure the disease and you can rent them or you can buy them and if you're not satisfied you can get your money back according to him after 45 days. There's another company I'm talkin to called healthy wave mats dot-com and there mats are a lot less cost and they claim they can really help and so I am debating which one to try I am either going to rent one or I'm going to buy one a try for 45 days and I will let everybody know whether this works for my our condition or not, however it does it could be a real help to us. I asked my doctor at the Mayo about this mechanism War Machine electronic Matt and he felt that it can hurt and if it helps it would be great but it's not covered under insurance. So they're not this claiming it at all and so look it up go to the website look up pemf there's a number machines out there and it's a multi tier system so Summit crossing over six $7,000 but there's a lot of cuts and commission on those type of products. The healthy wave mat is a direct buying it and there's no Uplink cost and it sounds like a good deal special you can buy it it only cost about $800 and if you don't like it at the 45 days or full refund

I don't know where Lake County is but here is my doctor's contact info. She has people fly in from all over the U.S.

Linda Bluestein, MD
WI Integrative Pain Specialists
4203 Schofield Avenue, Suite 2
Weston, WI 54476
Phone: (715) 600-1722
https://www.wisconsinintegrativepainspecialists.org/

Hi again, I just researched PEMF. It sounds great. I would even like to try it!! My question, are there truly no side effects? Does it help nerve damage, scaring around the nerves? Why has this not been recommended by P.M. drs or others? I don't understand it?