Welcome @jonfortier, Your symptoms sound similar to another discussion started by @change25 here:
--- At a loss, multiple consultations still no answer...any idea?: https://connect.mayoclinic.org/discussion/at-a-loss-multiple-consultations-still-no-answer-any-idea/.

@change25 mentioned finally being diagnosed with Parry-Romberg Syndrome and may have some information or experience to share with you. I thought I would share these references to see if it sounds similar to your experiences.
--- Parry-Romberg Syndrome Information Page: https://www.ninds.nih.gov/Disorders/All-Disorders/Parry-Romberg-Information-Page
--- Parry Romberg Syndrome - NORD: https://rarediseases.org/rare-diseases/parry-romberg-syndrome/

Parry Romberg Syndrome is listed as one of the conditions treated by Mayo Clinic - https://www.mayoclinic.org/departments-centers/plastic-reconstructive-surgery-mayo-clinic/sections/conditions-treated/orc-20473072

If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.