← Return to Metanx, Repatha, Statins and making sure doctors keep check...

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@anthonyfesposito

I’m 89 had heart bypass surgery 30 years ago I’ve been on statins since then my cardiologists changed me to repatha injections for the last year when my PN started it’s been about a year ago. It’s a same I’m so confused I just don’t know what’s right and what’s wrong it would be nice if we could get a definitive answer regarding PN how it starts and how u can cure it. We can fly people to the moon, do heart transplants I could go on and on but this disease or sickness baffles everyone. I belong to the Mayo Clinic group and have read so many horrible stories. Yes I am confused but I try to stay positive it’s not easy when u can’t find (someone) who has beaten this dreadful disease. My only satisfaction I’ve only had it for about a year my worst affect is my (balance) with a few other side affects that I can deal with. But I consider myself very fortunate from all the things I’ve read and people I’ve talked to , but this disease still has taken taken a toll on me because of the person I was and the person I am today. I am not a very religious man but I pray for all those who have been affected by this awful disease. GOD BLESS U ALL

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Replies to "I’m 89 had heart bypass surgery 30 years ago I’ve been on statins since then my..."

@anthonyfesposito Thank you for sharing your journey and your thoughts. Like you, my most troublesome symptom from the PN is the balance issue. Some days I'm better than others, but I usually carry a cane if I'm going to walk a long distance, just in case. My PN appeared after my laminectomy 15 months ago, but I had been almost unable to walk for a year, so it could have started back then and I just didn't notice it until after the laminectomy. Thanks to the surgery, I can walk. My muscles are not as strong as they were... but it's a huge improvement since the laminectomy. Like you, Anthony, I wish SOMEONE could find a treatment or cure for this disorder..... and find out what is actually causing it. Just the lack of balance takes a huge psychological toll, and I'm sure it's much worse for those who also experience pain and cramping. I am grateful for this Mayo Connect for the support of others who UNDERSTAND all too well what we are dealing with. I have learned so much from the stories others have shared here, and the wealth of information available from the Foundation for Peripheral Neuropathy.
I can't say for sure that either statins or Repatha caused my neuropathy. And IF they did, that does not mean that all people would be affected the same way. I'm still in the questioning phase and trying to find some encouraging news. I wish you all the best!!! Mike