Worried about upcoming reduction (had lumpectomy 3 weeks ago)

Posted by jfhpink @jfhpink, Sep 4, 2023

I am a worried and hoping you wonderful ladies have some words of wisdom and comfort. Had lumpectomy and 3 nodes removed on Aug 21. Breast Reduction surgery in one week. Still feeling discomfort around scars and worried about what to expect after reduction. I have been practicing my back sleeping, concerned about needing drains, etc. What do I have to look forward to? THANK YOU xoxoxo

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@lisas1029

@gemjaynes - How did you end up a cup size bigger?! I'm a B, which is relatively proportionate to my body, although I've always wished they were a little bigger. I had a lumpectomy for atypical ductal hyperplasia but the pathology report revealed invasive tubular carcinoma and DCIS. Because they found cancer, I have to go back to have a sentinel lymph node biopsy and was told I could get a lift while I'm under anesthesia. While I would like to have my breasts be more symmetrical, I'm worried that a lift will make my breasts even smaller, especially as I have to have radiation afterward, which I've read can shrink your breast by as much as 20%!

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I think the biggest concern for breast shrinkage after radiation is when they do whole breast radiation. I had partial breast radiation - and my breast is actually larger. I don’t have an accurate answer for why - I thought that there was still a possibility that there might be shrinkage at my 1 year check. They are also watching an enlarged axillary lymph node on the same side, so I thought there might still be upcoming surgery.
I’m coming up to my 18 month check, and I plan to get specific answers as to what the expectation is now.

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@triciaot

I think the biggest concern for breast shrinkage after radiation is when they do whole breast radiation. I had partial breast radiation - and my breast is actually larger. I don’t have an accurate answer for why - I thought that there was still a possibility that there might be shrinkage at my 1 year check. They are also watching an enlarged axillary lymph node on the same side, so I thought there might still be upcoming surgery.
I’m coming up to my 18 month check, and I plan to get specific answers as to what the expectation is now.

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Hi @triciaot, Thanks for your response. I will be having whole breast radiation, so maybe I should expect some shrinkage. But I guess like many things related to treatment there are a lot of unknowns.
Fingers crossed that your enlarged axillary lymph node is benign and that the doctors can do something to ease any discomfort it may cause. Good luck!

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@triciaot

I think the biggest concern for breast shrinkage after radiation is when they do whole breast radiation. I had partial breast radiation - and my breast is actually larger. I don’t have an accurate answer for why - I thought that there was still a possibility that there might be shrinkage at my 1 year check. They are also watching an enlarged axillary lymph node on the same side, so I thought there might still be upcoming surgery.
I’m coming up to my 18 month check, and I plan to get specific answers as to what the expectation is now.

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Your breast may be larger due to breast lymphedema. After my lumpectomy and sentinel lymph node biopsy, my affected breast was noticeably smaller. Pretty soon, however, I noticed it became bigger, even larger than my other breast. I was seeing a physical therapist to monitor for lymphedema, and she immediately identified breast lymphedema. My breast had a slight orange peel texture that is also a sign of lymphedema. I did have chemo and 33 radiation treatments (28 to the whole breast) but never saw shrinking. With a few, very easy things, I keep the breast lymphedema in check, but my PT has seen women with affected breasts that become gigantic. I’d ask about the possibility of breast lymphedema!

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Hi @sarahmh

I never considered that the breast getting bigger after radiation could be breast lymphedema.

I found out at my one year after BC discovery mammogram and ultrasound.

What type of program do you do daily?

I am see a PT lymphedema specialist now.

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@timely

Hi @sarahmh

I never considered that the breast getting bigger after radiation could be breast lymphedema.

I found out at my one year after BC discovery mammogram and ultrasound.

What type of program do you do daily?

I am see a PT lymphedema specialist now.

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That’s great you’re seeing a lymphedema specialist! She should steer you in the right direction. The easiest thing I do that has a surprisingly big impact is to wear a Swell Spot inside a very snug bra. It still amazes me that it makes such a difference! I also do a lymphedema exercise class once a week called Healthy Steps. I do it in person at a local cancer resource center, but I believe you can find classes or YouTube videos online. Every once in a while I do a little manual drainage. These measures really help keep the lymphedema at bay, and I can tell when I slack off on the exercise or don’t wear my Swell Spot for a while!

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@sarahmh

That’s great you’re seeing a lymphedema specialist! She should steer you in the right direction. The easiest thing I do that has a surprisingly big impact is to wear a Swell Spot inside a very snug bra. It still amazes me that it makes such a difference! I also do a lymphedema exercise class once a week called Healthy Steps. I do it in person at a local cancer resource center, but I believe you can find classes or YouTube videos online. Every once in a while I do a little manual drainage. These measures really help keep the lymphedema at bay, and I can tell when I slack off on the exercise or don’t wear my Swell Spot for a while!

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@sarahmh

This is my 2nd breast lymphedema specialist,
I needed a second opinion to find out if I have stomach lymphedema too and to get a more precise and shorter self massage daily routine.

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@sarahmh

Your breast may be larger due to breast lymphedema. After my lumpectomy and sentinel lymph node biopsy, my affected breast was noticeably smaller. Pretty soon, however, I noticed it became bigger, even larger than my other breast. I was seeing a physical therapist to monitor for lymphedema, and she immediately identified breast lymphedema. My breast had a slight orange peel texture that is also a sign of lymphedema. I did have chemo and 33 radiation treatments (28 to the whole breast) but never saw shrinking. With a few, very easy things, I keep the breast lymphedema in check, but my PT has seen women with affected breasts that become gigantic. I’d ask about the possibility of breast lymphedema!

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Thanks! I hope to find out more specifically what’s going on next month. But maybe I just need to go see a PT and see if they think it’s lymphedema.

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