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Arachnoiditis: Trying to find a specialist

Spine Health | Last Active: Mar 31 2:11pm | Replies (325)

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@lisalucier

Hi, @kathrynd1 - welcome to Mayo Clinic Connect. Sounds like you have a story to share with your journey with arachnoiditis with debilatating pain.

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This would be a great place to explain some of your story, and I'm sure others in this conversation would benefit from hearing it. If it's very long, perhaps in brief to begin?

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Replies to "Hi, @kathrynd1 - welcome to Mayo Clinic Connect. Sounds like you have a story to share..."

Hello to everyone! It sounds like we all have been on a journey to get here, I only wish it had been a fun journey. For those of us who have been diagnosed with arachnoiditis, it has been quite an experience. I knew there was something wrong with me but some doctors said there wasn't anything wrong with me and I walked right out of their office. I was not going to give up.

My husband and I relocated to Charlotte, NC from Boston in 2004 and the pain followed me down here! I have had a dozen back surgeries, way too many epidural cortisone shots, a spinal cord stimulator and a pain pump implanted and nothing helped, I kept on getting worse and worse. The last year has been crazy, I was hospitilized in October and the team of doctors on my case told me I had arachnoiditis. Just the sound of this word kind of sounds evil.

I spend most days on the couch with ice packs under my legs. When I do go out it seems that I pay for it later. Does anyone know of any good doctors in the Charlotte area?

Well that is enough for now, would love to hear from people in the same boat!
kathrynd1