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Arachnoiditis: Trying to find a specialist

Spine Health | Last Active: Nov 30 4:16pm | Replies (326)
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@kathrynd1

@peggyella I also have Arachnoiditis with debilatating pain,I feel for everyone withth this condition. I just now joined this group and don't know where to go to post my own very long story. I would like to find a support group. From what I have read elsewhere doctors don't know, understand this condition, or know when a patient has this. It seems to me more awareness needs to be brought out to doctors and the goverment.

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Replies to "@peggyella I also have Arachnoiditis with debilatating pain,I feel for everyone withth this condition. I just..."
Lisa Lucier, Moderator | @lisalucier | Jan 23, 2020

Hi, @kathrynd1 - welcome to Mayo Clinic Connect. Sounds like you have a story to share with your journey with arachnoiditis with debilatating pain.

Please click View & Reply in your email notification so you can see the conversation in its entirety on the Connect site.

This would be a great place to explain some of your story, and I'm sure others in this conversation would benefit from hearing it. If it's very long, perhaps in brief to begin?

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