← Return to CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Discussion

CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Autoimmune Diseases | Last Active: Oct 13 3:46pm | Replies (312)
Comment receiving replies
@johnbishop

Welcome @kjwalkercidp, I'm hoping @sherlock and other members with CIDP can answer your question. I'm pretty sure you are not alone. I did find some others talking about frequent chills in a reference that seems to be what you mentioned.

"Since the beginning of my CIDP symptoms, I have gotten chills every now and then.[/QUOTE]. I have CIDP and cold temperatures are a problem for me. I ..."
--- GBS/CIDP Foundation International: https://forum.gbs-cidp.org/forums/topic/chills-anyone/

Have you discussed the symptoms with your doctor or neurologist?

Jump to this post

Replies to "Welcome @kjwalkercidp, I'm hoping @sherlock and other members with CIDP can answer your question. I'm pretty..."
harley22 | @harley22 | Mar 15 11:20am

Although I don’t suffer from chills, I do have issues with temp control.
I am extremely sensitive to heat, and need my air conditioning on when my house is hotter than 76 degrees.
When visiting my daughter up North, the cold temps bother me
immensely.
This has been since my CIDP symptoms have gotten worse.
What makes it worse is that my husband is always cold, and hates the fan on and the air conditioning on.
It makes for alot of arguments!

VIEW AND REPLY
kjwalkercidp | @kjwalkercidp | Mar 15 7:52pm

Thanks @johnbishop so yea seems I'm not alone. I'll be seeing my neurologist again next week on treatment so gonna bring it up. Thanks for sharing the forum link. Sounds pretty much like my experiences.

Happy to have found this forum too. Seems there aren't many community group sites for us CIDP warriors.

Ken

VIEW AND REPLY